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We are always open to suggestions, ideas and ways to make our website work better for you. If you would like to send links to articles or resources, or if you have an idea of something that you would like to see on our site, please send us an email.

We feel that by sharing our stories, ideas, and inspirations we can grow together as a community while learning more about Chromosome 17 disorders and how they can affect our, and our children's, lives.

Kids Health-has easy to read medical information for teens, kids, and even parents!

Taryn’s World-A kids guide to switches.

Kids Camps-Camps for special needs.

Special Olympics-Special Olympics is an international nonprofit organization* dedicated to empowering individuals with intellectual disabilities to become physically fit, productive and respected members of society through sports training and competition. Special Olympics offers children and adults with intellectual disabilities year-round training and competition in 30 Olympic-type summer and winter sports.

The Sibling Support Project-is a national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns.